Friday, September 03, 2010

Making a Comeback


This is me lately. unaltered. sick. unwaxed eyebrows. in terrible need of a haircut and dye refresher. dark- dark circles. in pajamas most of the day... but right now, this is my reality. It is days and weeks like I've been having that make me realize how precious it is to have health...to feel really good. To move freely. To bend and twist and dance...
I've been angry at my body. I've been weepy. I've felt sorry for myself briefly....but I don't stay down long. I suffer from chronic pain, nerve damage and spurts of extreme exhaustion. Finally diagnosed with a disease (Fabry's Disease) that makes all of these things finally make sense and I am truly thankful for that. What used to come and go, now just hangs around all day and all night, at times reducing me to tears of frustration...but this I know: the show must go on...and there are those out there so much worse off than I am. There are children out there suffering from much worse and I've already been blessed with 39 years of feeling good and lots of chances for yoga and dancing.
I am still hopeful, and grateful to be alive. And I have managed to make some things while I've been away.

Just some simple things for the shop. (available here)

Thank you listening to me ramble a bit. I've missed you all and I've thought of you every. single. day. that I've been away. The pull to the computer has been overshadowed by the pull to the bed. But I don't stay down for long. Nope. I don't.

16 comments:

  1. Ohh, I'm so sorry for you. I hope you can cope with this new situation soon. Keep going - and the stuff you made is awesome!

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  2. So good to have you back; we don't realize how much someone like you fills our day with joy until you miss a day, or two, or three. Keep in touch when you can; we worry, you know, and we are beside you in any way you need.

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  3. I am so sorry that you are struggling right now. I hope that it is temporary and that you are soon back to your happy, dancing self :)

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  4. You look marvelous! You look strong and determined and you radiate the love and light you share with others! I'm so glad to see back online-you've been missed. If there is ever anything I can do let me know-I really mean it...

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  5. sorry you've had such a rough time. i hope there is good treatment available for you and you can adjust and learn to manage things ok. best wishes. xx

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  6. Glad to see you sweet sister. Much love to you and healing prayers. ♥

    Jenny

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  7. You are so healed and such a blessing -- you don't hit your snooze! I'm adding you to my list of blog-noggin' let's go blog-noggin' -- my favorite blogs to visit. I'm creating a blog and have published my first post. But that is not why I am here, I was moved to write. So I don't won't you to think otherwise. Love to you and healing too Terri Stephens

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  8. You are LOVED! Fabry's is HATED!

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  9. I feel your pain, I'm so sorry your feeling in a funk and have to battle a disease too. Hugs your way!

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  10. Thinking of you today dearest. Hugs & kisses. Emily. XOXOXOXOXOXOXOXO

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  11. You make me ashamed of all the belly aching I've been doing lately. :(

    Praying for God's healing touch for you.

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  12. Wishing you well and sending more good energy your way. So happy to have you back:)
    -Mia

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  13. I've been thinking about you always and am so glad you're baaaaack. Know that you are appreciated and beloved so much.... I agree w/ every little bit MDJ said above. And some of the best advice ever shared by this genius i know (you!) - "Keep Going!" Hope you sink into deep, restful, healing sleep.

    With Love,
    Carissa

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  14. i am coming by way of the beautiful and wise Carissa.

    wishing you rest and healing....
    and the energy you need to walk
    through your days.

    the pieces you created are just lovely....
    just like all the others!

    xoxo
    k

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  15. Jennifer: I found you via Belle Armoire, and fell in love with your work; very inspiring and beautiful. I am sorry to hear of your diagnosis, but feel encouraged by your positive attitude and strength. May God Bless and I will definitely be back to follow :-)

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  16. After the Flying lessons I've been following your blog and your creative journey... You bring life to the imperfect things, so I believe you have a power to bring life to you = you have the healing energy and mission, you are blessed! We are all with you... Hugs, Jozica

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Thank you so much for taking the time to leave a comment! Please know that I am deeply grateful for your presence here.